I don't remember what I told you all last. I just wanted to do a quick update.
Zach's seeming better and better everyday. The doctor says working on c-dif can take a long time (long past medicine ends) due to continually trying to increase the good bugs in his stomach. But I feel like we're on the right path.
Owen's urinalysis labs came back and it was negative for a bladder infection. So we took him off of his meds. This is all a great thing, but we can't ignore he had blood in his urine. So the doc wants to run another test in a couple of weeks to make sure there's not blood still.
The best news of all - Owen and Zach's blood results came back NEGATIVE for celiac! I was so excited. It was the breath of fresh air that I needed!
Cameron still has lots of unanswered questions with him. We're still working on getting him better with the c-dif and have a consultation with a pediatric GI specialist next Thursday to talk about doing a biopsy (for celiac since his blood test was positive). I feel like we're making progress in understanding what he needs. His pediatrician has been so wonderful to consistently and promptly and sensitively answer all my questions and concerns. I'm excited to get in front of a specialist next week to get down to all the nitty gritty of it all.
Last Sunday Cameron got a priesthood blessing that talked about him being able to play and be a normal kid. I'm so glad that I got to hear the blessing and have it to keep my hope and faith going. It reminds me that things are still so so wonderful and that this is harder on Trevor and I than it is them. I know that, as we've asked, angels have surrounded us, comforted us and loved us. I feel like the clouds are starting to part and the sun is streaming in!
Thank you all for your prayers and love!
Zach's seeming better and better everyday. The doctor says working on c-dif can take a long time (long past medicine ends) due to continually trying to increase the good bugs in his stomach. But I feel like we're on the right path.
Owen's urinalysis labs came back and it was negative for a bladder infection. So we took him off of his meds. This is all a great thing, but we can't ignore he had blood in his urine. So the doc wants to run another test in a couple of weeks to make sure there's not blood still.
The best news of all - Owen and Zach's blood results came back NEGATIVE for celiac! I was so excited. It was the breath of fresh air that I needed!
Cameron still has lots of unanswered questions with him. We're still working on getting him better with the c-dif and have a consultation with a pediatric GI specialist next Thursday to talk about doing a biopsy (for celiac since his blood test was positive). I feel like we're making progress in understanding what he needs. His pediatrician has been so wonderful to consistently and promptly and sensitively answer all my questions and concerns. I'm excited to get in front of a specialist next week to get down to all the nitty gritty of it all.
Last Sunday Cameron got a priesthood blessing that talked about him being able to play and be a normal kid. I'm so glad that I got to hear the blessing and have it to keep my hope and faith going. It reminds me that things are still so so wonderful and that this is harder on Trevor and I than it is them. I know that, as we've asked, angels have surrounded us, comforted us and loved us. I feel like the clouds are starting to part and the sun is streaming in!Thank you all for your prayers and love!
3 comments:
So glad things are looking better! I wish so badly that I could be there to help with anything.
Send me your address in an email so I can send you something/anything that you or your boys need.
kristen.bailey73@gmail.com
I feel so bad that I told you that I felt better so fast and that's not the case for your guys! I'm so sorry. When I had it I went to (no less then) 7 doctors before they finally figured out what it was. You guys are in my prayers... and you are such an AMAZING woman, mother and wife!
I am so sorry!! You poor little angels!!! Please let me know if I can help in any way! I know celiac disease can be so hard and is life-altering, but I know that you guys can handle it. My favorite author was diagnosed with it, anitastansfield.com, and she is doing much better with it now that they finally figured it out. I love you and my prayers are with you!!
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